She Earns Union Wages and Still Can’t Save a Dollar — The Hidden Cost of Caring for a Disabled Sibling

Have you ever looked at your bank account at the end of the month and wondered where the money went — not because you spent…

She Earns Union Wages and Still Can't Save a Dollar — The Hidden Cost of Caring for a Disabled Sibling
She Earns Union Wages and Still Can't Save a Dollar — The Hidden Cost of Caring for a Disabled Sibling

Have you ever looked at your bank account at the end of the month and wondered where the money went — not because you spent it carelessly, but because someone you love needed it more than you did?

When I sat down with Monique Washington at a coffee shop in East Baltimore on a Tuesday morning in late March, she had just finished a six-day stretch of early morning routes for UPS. She was still wearing her uniform. She ordered a small coffee, black, and when I asked how she was doing, she paused for a moment longer than most people would.

“I’m fine,” she said, with a small, practiced smile. “I’m always fine.”

The Accident That Changed Everything

Monique is 43. Her brother, Darius, is 38. Thirteen years ago, when Darius was 25, he was struck by a driver who ran a red light in West Baltimore. The collision left him with a traumatic brain injury and partial paralysis on his left side. He requires daily assistance with mobility, medication management, and personal care.

Their parents died within three years of each other — their father from a heart attack in 2018, their mother from complications following a stroke in 2020. That left Monique as the only family Darius has.

Darius qualifies for Social Security Disability Insurance. According to the Social Security Administration, the average monthly SSDI payment in 2025 was approximately $1,580. Darius receives roughly $1,050 a month — below the average because his work history before the accident was limited. He also qualifies for Medicaid in Maryland, which covers his primary care visits, some prescriptions, and a set number of home aide hours per week.

KEY TAKEAWAY
Darius receives $1,050/month in SSDI — below the national average — and Maryland Medicaid covers his primary care. But the uncovered gap costs Monique an estimated $900 to $1,100 every month out of her own pocket.

The coverage, Monique told me, sounds comprehensive until you look at the details. Medicaid allows Darius a certain number of home aide hours per week through Maryland’s Community First Choice program. But those hours don’t stretch across seven full days, and Darius can’t be left alone for extended periods without risk. So Monique fills the gaps herself — or pays someone else to.

The Gap Nobody Talks About

Monique broke down her monthly out-of-pocket costs for me on a napkin, the way someone does when they’ve done the math so many times it’s automatic. Supplemental home aide hours run her approximately $420 a month. Accessible medical transportation — because Maryland’s Medicaid transport program has long waitlists and scheduling gaps — costs her another $190 a month through a private paratransit service.

$420
Monthly supplemental aide hours

$190
Private paratransit monthly

$310
Medical supplies not covered

Medical supplies — compression garments, specialized wound care dressings, adaptive eating utensils — add roughly $310 more. Then there are occasional co-pays, over-the-counter medications, and the cost of modifying Darius’s apartment bathroom two years ago, which she financed through a personal loan she’s still paying off at $140 a month.

The total, most months, is somewhere between $900 and $1,100. And that’s before her own rent, her own car payment, her own groceries.

“People always say, ‘You should apply for this program’ or ‘Have you looked into that benefit.’ I’ve looked into all of it. I spend more time on hold with government offices than most people spend watching TV. The programs help — they just don’t help enough.”
— Monique Washington, UPS driver, Baltimore, MD

What the Union Wages Don’t Fix

Monique is a senior driver with UPS and a Teamsters union member. Her wages are real — she earns approximately $82,000 a year before taxes, which puts her solidly in the middle class on paper. She told me she feels guilty even acknowledging the financial strain, because she knows people have it far worse.

“I’m not broke,” she said, and she was careful with the word. “I’m not struggling to eat. But I am not building anything either. And at 43, that’s starting to feel like a real problem.”

Monique has not contributed to her UPS Teamsters pension supplement or any personal retirement savings account in nearly four years. According to the U.S. Department of Labor, workers who delay retirement contributions in their 40s face a significantly compressed window to build adequate savings before a standard retirement age. Monique understands this. She just doesn’t have a different answer right now.

⚠ IMPORTANT
Monique’s situation reflects a documented caregiving gap in the U.S. According to the Administration for Community Living, approximately 53 million Americans provide unpaid or underfunded care to a family member — many absorbing costs that public programs do not fully cover.

She cannot relocate. Darius’s Medicaid coverage, his medical team, and his established support network are all in Baltimore. She cannot change to a later shift, though she’s been offered one twice, because Darius’s morning routines require her to be home or to have paid coverage arranged by 6 a.m. Flexibility, she told me, is a luxury she gave up years ago.

The Vacation She Stopped Counting

Six years. That’s how long it has been since Monique took what she called a real vacation — meaning more than two consecutive days away from Baltimore, away from the logistics of Darius’s care. She has Teamsters-negotiated paid time off that she mostly uses in single days here and there, patching together coverage for her brother when she needs it.

I asked her how that felt. She looked at the table for a moment.

“I stopped thinking about it. That’s the honest answer. If you keep thinking about what you don’t have, it breaks you. So I just stopped thinking about vacations like they were something that applied to me.”
— Monique Washington

What struck me about that answer wasn’t the resignation in it — it was how matter-of-fact she was. Monique Washington isn’t looking for sympathy. She chose to take care of her brother, and she would make that choice again. But choosing something freely doesn’t mean it doesn’t cost you.

What Monique Has Navigated in Six Years
1
2020 — Mother passed. Monique became Darius’s sole legal caregiver and emergency contact.

2
2021 — Applied for Maryland Medicaid waiver expansion for Darius. Approved after a 14-month wait.

3
2023 — Took out a $7,800 personal loan to finance bathroom accessibility modifications for Darius’s apartment.

4
2024 — Stopped contributing to retirement savings entirely as supplemental care costs rose.

5
2026 — Still on a waitlist for expanded Maryland Community First Choice aide hours. Wait time: unknown.

A Turning Point That Hasn’t Arrived Yet

Many personal finance stories have a turning point — the moment the subject made a change, found a program, got ahead. Monique’s story doesn’t have that yet, and I think that’s worth saying plainly.

She is currently on a waitlist for expanded home aide hours through Maryland’s Community First Choice program, which she was told could reduce her monthly supplemental care costs by $200 to $300 if approved. She’s been on the list for eleven months. She doesn’t know when — or whether — she’ll move up.

She has also begun researching whether Darius might qualify for any additional SSDI benefits based on his age or a review of his original claim, which she submitted herself when their mother became too ill to manage it. She found inconsistencies in how his work credits were calculated, and she’s gathering documentation.

“I’m not sitting still. I’m just also not sure what moving forward looks like when you’re tied to someone else’s needs. It’s not a complaint — it’s just true.”
— Monique Washington

What she does know is that she wants to retire one day. She is 43. She has, by her own estimate, roughly $18,000 in her Teamsters pension account — far short of what she would need for a stable retirement. That number doesn’t panic her out loud, but when she mentioned it, she looked away briefly.

Coverage Source What It Covers Monthly Gap (Monique’s Cost)
SSDI $1,050/month income for Darius Doesn’t cover care costs
Maryland Medicaid Doctor visits, prescriptions, limited aide hours ~$420 (supplemental aide)
Medicaid Transport Some non-emergency medical transport ~$190 (private paratransit gap)
Medicaid DME Some durable medical equipment ~$310 (uncovered supplies)

What Her Story Actually Tells Us

Monique Washington is not a cautionary tale about bad decisions. She made no bad decisions. She took a union job, she showed up for her family, and she has navigated a system that was not designed to account for people like her — the ones who absorb the uncovered costs of a disabled family member without any formal support structure or compensation.

What she told me at the end of our conversation stayed with me. I had asked whether she ever resents Darius — not as an accusation, but as a genuine human question. She was quiet for longer than I expected.

“I don’t resent him. I resent the system that makes me feel like this is just supposed to be my job because I’m his sister. Nobody asked me. Nobody trained me. Nobody pays me. I just do it, because who else is going to?”
— Monique Washington

She finished her coffee and checked her phone — a reminder about Darius’s Thursday appointment. She had already arranged coverage for it, she said, tucking the phone away efficiently. Then she thanked me for listening, which she said she doesn’t get to do very often.

As I watched her walk back to her car in her UPS browns, I thought about how many Moniques there are in this country — people earning enough to be invisible to the safety net, but not enough to be untouched by the gaps in it. Their stories don’t always resolve neatly. Sometimes they just continue, one careful month at a time.

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Related: Warren Jeffries Has $680,000 Saved for Retirement and Still Loses Sleep Over One Number

Frequently Asked Questions

Can a family caregiver get paid through Medicaid for caring for a disabled sibling?

In some states, Medicaid self-direction programs allow family members — including siblings — to be compensated as paid caregivers. Maryland’s Community First Choice and Medicaid waiver programs offer this in limited circumstances, but eligibility, pay rates, and availability vary. Check with your state Medicaid office directly.
What is the average SSDI payment for someone with a traumatic brain injury?

The Social Security Administration reported an average monthly SSDI payment of approximately $1,580 in 2025. Individual payments are based on lifetime work earnings history, so younger recipients or those with limited work records often receive significantly less — in some cases below $1,100 per month.
What does Maryland Medicaid cover for disabled adults living at home?

Maryland Medicaid covers primary care, some prescriptions, limited home aide hours through the Community First Choice program, and some non-emergency medical transportation. Gaps commonly include supplemental aide hours, adaptive medical supplies, and private paratransit services when state transport has scheduling limitations.
Can a family caregiver get any federal tax benefit for caring for a disabled sibling?

The IRS allows a Dependent Care Credit if the caregiver pays for care services for a qualifying dependent — including a disabled sibling who lives with the taxpayer and cannot care for themselves. The credit amount varies based on income and qualifying expenses. Current eligibility thresholds are listed at irs.gov.
How many Americans are unpaid family caregivers?

According to the Administration for Community Living, approximately 53 million Americans provide unpaid or underfunded care to a family member with a disability, chronic illness, or aging-related need. Many absorb out-of-pocket costs that public benefit programs do not fully cover.

218 articles

Sloane Avery Wren

Senior Benefits Writer covering Social Security, Medicare, and retirement policy. M.P.P. University of Michigan. Former CBPP researcher. NSSA Certified.

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